{"id":5822,"date":"2025-03-01T15:59:13","date_gmt":"2025-03-01T14:59:13","guid":{"rendered":"https:\/\/plodnost.com.mk\/?p=5822"},"modified":"2025-05-23T15:01:20","modified_gmt":"2025-05-23T13:01:20","slug":"world-rare-disease-day","status":"publish","type":"post","link":"https:\/\/plodnost.com.mk\/sq\/world-rare-disease-day\/","title":{"rendered":"Panel diskutimi me rastin e Dit\u00ebs Bot\u00ebrore t\u00eb S\u00ebmundjeve t\u00eb Rralla"},"content":{"rendered":"<p>>It is rare to be rare, but you are not invisible.&nbsp;<br \/>\nN\u00eb shkoll\u00ebn fillore \u201cKol\u00eb Kaninski\u201d \u2013 Manastir me rastin e Dit\u00ebs Bot\u00ebrore t\u00eb S\u00ebmundjeve t\u00eb Rralla u mbajt panel diskutimi i r\u00ebnd\u00ebsish\u00ebm, ku fol\u00ebsit, ekspert\u00ebt mjek\u00ebsor\u00eb dhe familjet e prekura ndan\u00eb rr\u00ebfimet dhe njohurit\u00eb e tyre p\u00ebr sfidat me t\u00eb cilat p\u00ebrballen personat me s\u00ebmundje t\u00eb rralla. Ne ishim t\u00eb nderuar q\u00eb Dr. Margarita Kambovska, pediatre n\u00eb Spitalin Plodnost foli si eksperte e panelit. Ajo foli p\u00ebr r\u00ebnd\u00ebsin\u00eb e diagnostikimit t\u00eb hersh\u00ebm, kujdesit t\u00eb duhur mjek\u00ebsor dhe qasjes multidisiplinare n\u00eb trajtimin e s\u00ebmundjeve t\u00eb rralla te f\u00ebmij\u00ebt. Simona Joveska, nj\u00eb person me s\u00ebmundje t\u00eb rrall\u00eb, e cila foli p\u00ebr sfidat me t\u00eb cilat p\u00ebrballet n\u00eb jet\u00ebn e p\u00ebrditshme dhe Nikolina Petrovska, prind i nj\u00eb f\u00ebmije me nj\u00eb s\u00ebmundje t\u00eb rrall\u00eb, e cila foli p\u00ebr luft\u00ebn e familjeve p\u00ebr mb\u00ebshtetje dhe kushte m\u00eb t\u00eb mira, ndan\u00eb edhe p\u00ebrvojat e tyre nga Kononior T Mayovski. N\u00ebnkryetari i komun\u00ebs Bojan Bojkovski, i cili theksoi se institucionet kan\u00eb obligim q\u00eb t\u00eb krijojn\u00eb kushte m\u00eb t\u00eb mira p\u00ebr personat me s\u00ebmundje t\u00eb rralla dhe familjet e tyre. S\u00ebmundjet e rralla mund t\u00eb jen\u00eb t\u00eb rralla, por njer\u00ebzit q\u00eb jetojn\u00eb me to nuk jan\u00eb t\u00eb paduksh\u00ebm. Prandaj, si shoq\u00ebri, duhet t\u00eb tregojm\u00eb ndjeshm\u00ebri, solidaritet dhe t\u00eb avokojm\u00eb p\u00ebr kushte m\u00eb t\u00eb mira mjek\u00ebsore dhe sociale p\u00ebr t\u00eb gjith\u00eb.<\/p>\n<div class=\"image-row\"><img title=\"Panel Discussion On The Occasion Of World Rare Disease Day\" loading=\"lazy\" decoding=\"async\" class=\"wp-image-5827\" src=\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/002-2-320x222.jpg\" alt=\"Panel Discussion On The Occasion Of World Rare Disease Day\" width=\"320\" height=\"222\" srcset=\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/002-2-320x222.jpg 320w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/002-2-768x532.jpg 768w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/002-2-18x12.jpg 18w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/002-2-540x374.jpg 540w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/002-2-600x416.jpg 600w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/002-2.jpg 1080w\" sizes=\"auto, (max-width: 320px) 100vw, 320px\" \/> <img title=\"Panel Discussion On The Occasion Of World Rare Disease Day\" loading=\"lazy\" decoding=\"async\" class=\"wp-image-5828\" src=\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/003-1-320x222.jpg\" alt=\"Panel Discussion On The Occasion Of World Rare Disease Day\" width=\"320\" height=\"222\" srcset=\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/003-1-320x222.jpg 320w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/003-1-768x532.jpg 768w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/003-1-18x12.jpg 18w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/003-1-540x374.jpg 540w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/003-1-600x416.jpg 600w, https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/003-1.jpg 1080w\" sizes=\"auto, (max-width: 320px) 100vw, 320px\" \/><\/div>\n<p>N\u00eb Spitalin Plodnost, ne mbetemi t\u00eb p\u00ebrkushtuar p\u00ebr t\u00eb ofruar kujdes p\u00ebr t\u00eb gjith\u00eb pacient\u00ebt, p\u00ebrfshir\u00eb ata me s\u00ebmundje t\u00eb rralla.<\/p>\n<p>Nj\u00eb falenderim i madh p\u00ebr t\u00eb gjith\u00eb pjes\u00ebmarr\u00ebsit q\u00eb ndihmuan n\u00eb d\u00ebrgimin e k\u00ebtij mesazhi t\u00eb r\u00ebnd\u00ebsish\u00ebm, s\u00eb bashku jemi m\u00eb t\u00eb fort\u00eb!<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>It is rare to be rare, but you are not invisible. A significant panel discussion was held at the Primary School &#8220;Kole Kaninski&#8221; &#8211; Bitola on the occasion of the World Day of Rare Diseases, where speakers, medical experts and affected families shared their stories and knowledge about the challenges faced by people with rare diseases.<\/p>","protected":false},"author":8,"featured_media":5823,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"footnotes":""},"categories":[33],"tags":[95],"class_list":["post-5822","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-latest-news","tag-world-rare-disease-day"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Panel discussion on the occasion of World Rare Disease Day - Hospital Plodnost<\/title>\n<meta name=\"description\" content=\"It is rare to be rare, but you are not invisible. A significant panel discussion was held at the Primary School &quot;Kole Kaninski&quot; - Bitola on the occasion of the World Day of Rare Diseases, where speakers, medical experts and affected families shared their stories and knowledge about the challenges faced by people with rare diseases.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/plodnost.com.mk\/sq\/world-rare-disease-day\/\" \/>\n<meta property=\"og:locale\" content=\"sq_AL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Panel discussion on the occasion of World Rare Disease Day - Hospital Plodnost\" \/>\n<meta property=\"og:description\" content=\"It is rare to be rare, but you are not invisible. A significant panel discussion was held at the Primary School &quot;Kole Kaninski&quot; - Bitola on the occasion of the World Day of Rare Diseases, where speakers, medical experts and affected families shared their stories and knowledge about the challenges faced by people with rare diseases.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/plodnost.com.mk\/sq\/world-rare-disease-day\/\" \/>\n<meta property=\"og:site_name\" content=\"Hospital Plodnost\" \/>\n<meta property=\"article:published_time\" content=\"2025-03-01T14:59:13+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-05-23T13:01:20+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"748\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Natasha Kuzman\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Natasha Kuzman\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minuta\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/\"},\"author\":{\"name\":\"Natasha Kuzman\",\"@id\":\"https:\/\/plodnost.com.mk\/#\/schema\/person\/d4d75dc8c79389dae09ae6696ee95c29\"},\"headline\":\"Panel discussion on the occasion of World Rare Disease Day\",\"datePublished\":\"2025-03-01T14:59:13+00:00\",\"dateModified\":\"2025-05-23T13:01:20+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/\"},\"wordCount\":263,\"image\":{\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg\",\"keywords\":[\"World Rare Disease Day\"],\"articleSection\":[\"Latest News\"],\"inLanguage\":\"sq\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/\",\"url\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/\",\"name\":\"Panel discussion on the occasion of World Rare Disease Day - Hospital Plodnost\",\"isPartOf\":{\"@id\":\"https:\/\/plodnost.com.mk\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg\",\"datePublished\":\"2025-03-01T14:59:13+00:00\",\"dateModified\":\"2025-05-23T13:01:20+00:00\",\"author\":{\"@id\":\"https:\/\/plodnost.com.mk\/#\/schema\/person\/d4d75dc8c79389dae09ae6696ee95c29\"},\"description\":\"It is rare to be rare, but you are not invisible. A significant panel discussion was held at the Primary School \\\"Kole Kaninski\\\" - Bitola on the occasion of the World Day of Rare Diseases, where speakers, medical experts and affected families shared their stories and knowledge about the challenges faced by people with rare diseases.\",\"breadcrumb\":{\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#breadcrumb\"},\"inLanguage\":\"sq\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"sq\",\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage\",\"url\":\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg\",\"contentUrl\":\"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg\",\"width\":1080,\"height\":748,\"caption\":\"Panel Discussion On The Occasion Of World Rare Disease Day\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/plodnost.com.mk\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Panel discussion on the occasion of World Rare Disease Day\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/plodnost.com.mk\/#website\",\"url\":\"https:\/\/plodnost.com.mk\/\",\"name\":\"Hospital Plodnost\",\"description\":\"In-vitro Fertilisation (IVF) | Obstetrics and Gynaecology | Women&#039;s Hospital\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/plodnost.com.mk\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"sq\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/plodnost.com.mk\/#\/schema\/person\/d4d75dc8c79389dae09ae6696ee95c29\",\"name\":\"Natasha Kuzman\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"sq\",\"@id\":\"https:\/\/secure.gravatar.com\/avatar\/ddd439c1f27d1d9c5407409af621913e31cc46f3c5e44f38fd11a6c833f6ef29?s=96&d=mm&r=g\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/ddd439c1f27d1d9c5407409af621913e31cc46f3c5e44f38fd11a6c833f6ef29?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/ddd439c1f27d1d9c5407409af621913e31cc46f3c5e44f38fd11a6c833f6ef29?s=96&d=mm&r=g\",\"caption\":\"Natasha Kuzman\"},\"sameAs\":[\"https:\/\/plodnost.com.mk\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Panel discussion on the occasion of World Rare Disease Day - Hospital Plodnost","description":"It is rare to be rare, but you are not invisible. A significant panel discussion was held at the Primary School \"Kole Kaninski\" - Bitola on the occasion of the World Day of Rare Diseases, where speakers, medical experts and affected families shared their stories and knowledge about the challenges faced by people with rare diseases.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/plodnost.com.mk\/sq\/world-rare-disease-day\/","og_locale":"sq_AL","og_type":"article","og_title":"Panel discussion on the occasion of World Rare Disease Day - Hospital Plodnost","og_description":"It is rare to be rare, but you are not invisible. A significant panel discussion was held at the Primary School \"Kole Kaninski\" - Bitola on the occasion of the World Day of Rare Diseases, where speakers, medical experts and affected families shared their stories and knowledge about the challenges faced by people with rare diseases.","og_url":"https:\/\/plodnost.com.mk\/sq\/world-rare-disease-day\/","og_site_name":"Hospital Plodnost","article_published_time":"2025-03-01T14:59:13+00:00","article_modified_time":"2025-05-23T13:01:20+00:00","og_image":[{"width":1080,"height":748,"url":"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg","type":"image\/jpeg"}],"author":"Natasha Kuzman","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Natasha Kuzman","Est. reading time":"2 minuta"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#article","isPartOf":{"@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/"},"author":{"name":"Natasha Kuzman","@id":"https:\/\/plodnost.com.mk\/#\/schema\/person\/d4d75dc8c79389dae09ae6696ee95c29"},"headline":"Panel discussion on the occasion of World Rare Disease Day","datePublished":"2025-03-01T14:59:13+00:00","dateModified":"2025-05-23T13:01:20+00:00","mainEntityOfPage":{"@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/"},"wordCount":263,"image":{"@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage"},"thumbnailUrl":"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg","keywords":["World Rare Disease Day"],"articleSection":["Latest News"],"inLanguage":"sq"},{"@type":"WebPage","@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/","url":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/","name":"Panel discussion on the occasion of World Rare Disease Day - Hospital Plodnost","isPartOf":{"@id":"https:\/\/plodnost.com.mk\/#website"},"primaryImageOfPage":{"@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage"},"image":{"@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage"},"thumbnailUrl":"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg","datePublished":"2025-03-01T14:59:13+00:00","dateModified":"2025-05-23T13:01:20+00:00","author":{"@id":"https:\/\/plodnost.com.mk\/#\/schema\/person\/d4d75dc8c79389dae09ae6696ee95c29"},"description":"It is rare to be rare, but you are not invisible. A significant panel discussion was held at the Primary School \"Kole Kaninski\" - Bitola on the occasion of the World Day of Rare Diseases, where speakers, medical experts and affected families shared their stories and knowledge about the challenges faced by people with rare diseases.","breadcrumb":{"@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#breadcrumb"},"inLanguage":"sq","potentialAction":[{"@type":"ReadAction","target":["https:\/\/plodnost.com.mk\/world-rare-disease-day\/"]}]},{"@type":"ImageObject","inLanguage":"sq","@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#primaryimage","url":"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg","contentUrl":"https:\/\/plodnost.com.mk\/wp-content\/uploads\/2025\/03\/001-2.jpg","width":1080,"height":748,"caption":"Panel Discussion On The Occasion Of World Rare Disease Day"},{"@type":"BreadcrumbList","@id":"https:\/\/plodnost.com.mk\/world-rare-disease-day\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/plodnost.com.mk\/"},{"@type":"ListItem","position":2,"name":"Panel discussion on the occasion of World Rare Disease Day"}]},{"@type":"WebSite","@id":"https:\/\/plodnost.com.mk\/#website","url":"https:\/\/plodnost.com.mk\/","name":"Spitalin Plodnost","description":"In-vitro Fertilisation (IVF) | Obstetrics and Gynaecology | Women&#039;s Hospital","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/plodnost.com.mk\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"sq"},{"@type":"Person","@id":"https:\/\/plodnost.com.mk\/#\/schema\/person\/d4d75dc8c79389dae09ae6696ee95c29","name":"Natasha Kuzman","image":{"@type":"ImageObject","inLanguage":"sq","@id":"https:\/\/secure.gravatar.com\/avatar\/ddd439c1f27d1d9c5407409af621913e31cc46f3c5e44f38fd11a6c833f6ef29?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/ddd439c1f27d1d9c5407409af621913e31cc46f3c5e44f38fd11a6c833f6ef29?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/ddd439c1f27d1d9c5407409af621913e31cc46f3c5e44f38fd11a6c833f6ef29?s=96&d=mm&r=g","caption":"Natasha Kuzman"},"sameAs":["https:\/\/plodnost.com.mk"]}]}},"_links":{"self":[{"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/posts\/5822","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/comments?post=5822"}],"version-history":[{"count":17,"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/posts\/5822\/revisions"}],"predecessor-version":[{"id":7276,"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/posts\/5822\/revisions\/7276"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/media\/5823"}],"wp:attachment":[{"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/media?parent=5822"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/categories?post=5822"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/plodnost.com.mk\/sq\/wp-json\/wp\/v2\/tags?post=5822"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}